Hello Everyone,
The latest on my mom isn't the best news. They went down to Omaha this week to get a scan and hopefully the chemo...well, they got the scan but not the chemo. The appointment started out ok, the first look at the scan showed little change in the tumors, but unfortunately my mom's liver is swollen and the "liver marker" in her blood was too elevated so they decided to take her out of the study. She has been in it for about 2 years, which might be the longest anyone has responded to it so we are very thankful that drug did give her 2 good years...but now it's on to something new. She just found out today that she most likely will get into a phase 1 (new) study at the U of M at the end of August but the doctor down there didn't want her going that long without any chemo so she has an appointment with Dr. Levitt, the oncologist at Roger Marris she has been with all these years, to get her on another chemo hopefully by next Friday until she can get into that study. That's about all we know for now...don't know the new side effects the new stuff will have, don't know how often she will get the chemo, and don't know if anything will work... but like my Dad says, "maybe this will be the silver bullet that takes care of it". Let's hope and pray so!! As you can see...as many prayers you can send her will be much needed and greatly appreciated, you all have definitely helped her and the rest of our family get through this difficult journey.
Jul 29, 2010
Jul 18, 2010
Great Summer Weekend!
We had a great weekend home in Fargo this weekend. On Friday afternoon Shea and I got a few hours of sun in at my friend Emily's parent's pool. Shea lounged in the shade and I dipped her little feet in the water. She didn't like it at first and kinda whimpered/cried a little but got used to it more after a bit. Saturday Aaron got up with her and let me sleep in til 9:30! It was great! That afternoon I headed back to Emily's pool and brought my sister along this time while Aaron stayed home and got in some quality father-daughter time with Shea. I must admit it felt good to relax in the sun without having to keep my eye on Shea. :) Saturday evening we had dinner over at the Wells household with some friends and even got home and ready for bed early enough to watch a movie! I don't think Aaron and I have watched a movie together since before Shea was born, it was nice to relax as a family together and Shea even cooperated and sat quietly with us. Sunday Aaron got a nice round of golf in on a beautiful day and Shea and I attended my cousin's son's one year birthday party...it's amazing how much babies change in a year! It's hard to imagine that Shea will probably be walking around keeping us on our toes in a year!
Jul 16, 2010
Updates
Shea
Shea had her 2 month appointment yesterday and it went great....until the shots. She is now 9lbs 6oz and 22 1/2 inches long. She's in the 25th percentile for weight, 50th percentile for height, and her head measurement is in the 25th percentile...she's still a little peanut. Her doctor couldn't stop commenting how perfect she is (we already knew that though) and was so happy with everything. She was impressed with how alert and active she is and said she will probably be rolling over soon already, yikes! No more leaving her laying on things she might roll off of! The shots were a little hard for mom to watch...actually it was more the screaming afterward that was hard. Poor girl wasn't herself the rest of the night but she seems to be doing much better today. Since she is still under 10 pounds and her legs are still so skinny they only gave her 2 of the shots...we have to go back in 2 weeks for the 3rd one. We are so proud of how much our little girl is growing and learning already!
Mom
My moms labs came back better yesterday! Her liver marker was down about 80 points from where it was. I could tell my mom was surprised and happy it went down that much...it's either because her last bout of chemo is out of her system more or everyone's extra prayers are helping. Thank you all!! She is going to go in again for labs on Monday & if they are still down she may get her chemo in Omaha next Wednesday. Her doctor said she is going to talk to the head of the study first and see if they can maybe change the dosage of the chemo next time to make it easier on her liver. She will find out more I guess next Monday. Keep up the prayers!
Shea had her 2 month appointment yesterday and it went great....until the shots. She is now 9lbs 6oz and 22 1/2 inches long. She's in the 25th percentile for weight, 50th percentile for height, and her head measurement is in the 25th percentile...she's still a little peanut. Her doctor couldn't stop commenting how perfect she is (we already knew that though) and was so happy with everything. She was impressed with how alert and active she is and said she will probably be rolling over soon already, yikes! No more leaving her laying on things she might roll off of! The shots were a little hard for mom to watch...actually it was more the screaming afterward that was hard. Poor girl wasn't herself the rest of the night but she seems to be doing much better today. Since she is still under 10 pounds and her legs are still so skinny they only gave her 2 of the shots...we have to go back in 2 weeks for the 3rd one. We are so proud of how much our little girl is growing and learning already!
Mom
My moms labs came back better yesterday! Her liver marker was down about 80 points from where it was. I could tell my mom was surprised and happy it went down that much...it's either because her last bout of chemo is out of her system more or everyone's extra prayers are helping. Thank you all!! She is going to go in again for labs on Monday & if they are still down she may get her chemo in Omaha next Wednesday. Her doctor said she is going to talk to the head of the study first and see if they can maybe change the dosage of the chemo next time to make it easier on her liver. She will find out more I guess next Monday. Keep up the prayers!
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